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Cancer-free but never bounced back.

by Lindsey on 9/14/2007 at 8:19 pm in Survivors
9/14/07
I get so confused when I see people like Sheryl Crow and Melissa Ethridge who look great after their breast cancer. My mom is cancer-free but she is almost a completely different person now.
My mom was diagnosed a little over 2 years ago. She had a partial masectomy and underwent months of radiation and chemo. A woman who barely even ever had a cold, didn't even have a doctor, is now literally falling apart!
All of following happened only after the chemo:
She put on some noticeable weight and her hot flashes are almost unbearable. She got some sort of nerve disorder in her legs (I don't remember the name) that causes her swelling, pain, and limited mobility. Her scar tissue from her masectomy causes her pain as well. She got hypothyroidism. She had to get dentures because the chemo made it so she didn't produce enough saliva and her teeth started breaking all the time.
After her surgery to have the other breast reduced to regain symmetry, she got a HORRIBLE flesh-eating bacterial infection. The surgery didn't even give her symmetry, the reduced breast is now smaller than the other one! She had symptoms of shingles but I don't think that ever fully manifested itself. She is healing from the infection. but now, most recently, she has a blood clot in her leg. This blood clot is due to the post-cancer medication she is taking, and must take for the rest of her life (so the doctors say).
She used to be so active, a single working mom running a house and 25 acres while taking care of my brother and me.
The cure is worse than the disease!!!! Has anyone else had a survival that has been not such a happy ending?? Is this normal?? Why do so many others bounce back with vitality? My mom will be 53 this month. Someone once told me "you can only stack sh** so high" but it keeps getting higher and I worry about her strength, physically and emotionally. Please please let me know if there is someone else out there who is suffering similarly.

Comments:

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I am 1 1/2 years cancer free and I am NOT the same. JUST this week I got angry about my cancer because it has changed me. I'm so fortunate in that I didn't have some of the horrible side effects others have had, but I'm not the same and that makes me mad! I still don't have the energy, fatigue is always there but my oncologist blows me off about this. I'm not the happy-go-lucky always funny person anymore. I'm stressed to the max about finances and affording my oncological visits and medication. In fact, I've stopped taking my medication every day and am seriously thinking of stopping my oncological visits. I will continue with my yearly mammograms. I'm at my wits end. I'm no fun to be with and don't know how my husband tolerates me. I don't sleep. I gained TONS of weight right after chemo, luckily have since lost most of it. But it's my mental state the has me very worried. I don't like me anymore. Happy ending - yes - I'm cancer free and my cancer was stage I and my prognosis is fantastic. But happy cancer-free survivor? No. I was hoping I wasn't the only one that had these feelings.
by shotoclock
on 5/27/2008 at 4:02 pm
I'm 37 and 5 years cancer free and have never been the same since then. I am still going thur breast reconstrution. My story is not a happy one either. Friends and family say at least your still here. Oh, that makes me want to take off my shoe and throw it at them and say does that hurt.
Having had breast cancer changed me, but, not in a good way. It makes me upset that my life has changed so much.
by Nieves
on 4/10/2008 at 4:51 pm
I am a seven year survivor but am still having trouble with memory. I called by Dr. about info I have been reading to the net about chemo brain, but he just blew me off. I am so desparate and alone. Am I the only survivor still having side effects?
by cjsurvivor
on 10/15/2007 at 5:09 pm
Hey Hun I share your opinion of the treatment of breast cancer. My mom started treatment 5 years ago for breast cancer; she had a lump removed and underwent chemo. That made her sick but not as bad as the radiation. They found out months later that they over radiated her and basically killed the skin on her chest and neck. When they had to do surgery again on her breast the skin would not heal its self and she had to drive 45 minutes away to a university for hyperbaric treatments. This skin/nerve damage was so painful that the pain clinic ended up prescribing methadone. Well this was a terrible idea, not only was she so out of it all the time it caused serious stomach problems that left her hospitalized. Because of the damage skin damage to her chest she could barely lift her left arm and had to attend physical therapy for years. She had recovered from all of that about four years after they started treating her, but she still had some nerve damage in her arms. Because of all the problems she had, when she developed severe back pain a year ago they assumed it was all related, but 6 months ago we found out that the cancer has come back and returned in the bones. My mom always said that if it came back she would not go through all that again, but alas it is back and she is having chemo again. My family has also questioned how far we have really advanced and in 50 years will we look back as a civilization and not believe what we have done to these people? But the answer is these treatments save people RIGHT NOW, we will probably have better ways in the future but it is our best hope right now. Your mom isn’t alone, everyone’s experiences are different and I would bet most people’s aren’t as smooth as Celebrities make it seem. Your mom went through all this so she can be on this earth as long as possible just let her know you are there for her and you will face whatever the future holds together.
by Iowa Girl
on 9/20/2007 at 12:45 am
I am in chemo now and i have got to tell u we will survive but the scare for me is will there be side effects after....some i guess dont and some do...
by Wanda
on 9/15/2007 at 11:54 am
Lindsey - I am so very sorry that your mother has endured so much. Hopefully someone here can respond with some info for you. My medical oncologist told me that if my hot flashes got bad from taking tamoxifan that there are some anti depressents that really help. In fact a bc survivor that I know had this issue and she did this very thing and she said it helped so much with the hot flashes. We are praying for your family. Julie
by Decaturjulie
on 9/15/2007 at 7:05 am

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