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by NBCF Team on 6/1/2007 at 2:55 pmin category Tell Your Story
Whether you are newly diagnosed, in active treatment or even caring for someone with cancer, you will be faced with many questions and tough decisions. The good news is that you don’t have to go through it alone.

The NBCF Team invites you to participate in one of our many discussions with a community of survivors and supporters who understand the physical, mental and emotional impact of cancer about a range of topics. This is your chance to share your experiences, ask questions, get answers, offer support and help others.

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You made it through this once , jusy get in there ang get that node checked, they need to be thorough, and so do you. This is your life, your in control, you will get done whatever needs to be done. It may be nothing but dont get worked up, just get reselts, good luck to you, I will br praying fo you
Diane :
Last week I had a bilateral simple mastectomy, the final pathology report just came back and now I have to go back into the hospital to have the nods chcked under my one arm. Because they found a small cancer stage 1a in a scar from a previous biopsy. I can't stop crying does any one have any ideas on how to stop and pick myself up and go agian. please help


by Tabi37indiana
on 5/15/2008 at 4:11 am

Norene:
Hello my name is Norene and I'm lost in all of this don't want to believe it is true I have had all the things done surgery and now I'm on my way for the radiation and will take a pill for 5yrs. anti estorgen and I don't know what do look for in this , sickness or not so bad ? I feel sad that us women have to face this but thank God we have each other to support and to know there is hope.


by bebrave
on 4/16/2008 at 10:05 pm
Hello my name is Norene and I'm lost in all of this don't want to believe it is true I have had all the things done surgery and now I'm on my way for the radiation and will take a pill for 5yrs. anti estorgen and I don't know what do look for in this , sickness or not so bad ? I feel sad that us women have to face this but thank God we have each other to support and to know there is hope.
by Norene
on 3/5/2008 at 4:59 pm
hi, my name is wanda and my doctor thinks that i might have breast cancer(actually her exact words were "i'm pretty sure thats what it is and it is very serious") She thinks the kind i have is rare occuring in only 1-3% of all breast cancers. I have already had a hysterectomy at the age of 25 because of pre-cervical cancer. And now i am faced with this I am scared to go to the specialist and yet i want to go so that i can get it overwith but I live paycheck to paycheck and have four children and a home to take care of and i do not have insurance and i cannot afford to go to the doctor. What do I do? randellblalock@bellsouth.net. sorry i share my email with my husband
by wanda5
on 11/18/2007 at 4:43 pm
Hi, my name is monica..
Im afraid because i have a lump on my armpit. I'm 16 and afraid to have a breast cancer.
by Monica101
on 11/3/2007 at 1:14 am
Hi,
I was newly diagnosed this past July. I went for my routine mamo and they found a spot. I then had a needle biopsy which came back negative. My surgeon was not comfortable with the results and we proceeded with an open biospy which came back positive for invasive breast cancer what was thought to be clean tissue contained another tumor. When they checked the lymph nodes they went back in a removed the second tumor. I am fortunate that none of my lymph nodes were involved however they did remove five of them. I entered a study and after testing my tumors they found that I needed more than just radiations so I will be starting my chemo on Halloween. I am so confused by all this and yes very scared. I never expected to fall into the high category. My mind keep wondering if this is all true. I just can't seem to accept all of this. I am also taking care of a handicap husband. I keep praying God will give me the strength to get through four months of chemo and six weeks of radiation. Can any one give me some insight to the process for chemo.
by Firstlight
on 10/26/2007 at 3:20 pm
Hello. I'm Gretchen. My mother has not been diagnosed yet. We are going to her appointment today. I truly hope the results are of something else. The doctors do say that it "appears" malignant. Anyway.....I am her eyes and ears. IF she has Cancer, we will meet it with full force. She is so good about her care so if anything, we know this would be an early detection. I'm glad this site is here and I plan on using it.
by The Ghetto Martha Stewart
on 10/25/2007 at 10:02 am
Hi, My name is Bonnie (Bonce) and I was diagnosed with advanced breast cancer to my bones and bone marrow in November 2005. I am doing Ok and am being treated in England where I am currently living. Does anyone else know of anyone who has a similar diagnosis and what they are being treated with. I am on Tamoxifen and Xeloda but am worried that there are few other options for me. My Dr. said he doesn't know how long I will have left as I am very rare to be in the bone marrow as well as the bone. Please let me know if you have or know anyone similar. b.clutterbuck@talk21.com
by Bonce
on 9/25/2007 at 12:14 pm
Hi, My name is Bonnie (Bonce) and I was diagnosed with advanced breast cancer to my bones and bone marrow in November 2005. I am doing Ok and am being treated in England where I am currently living. Does anyone else know of anyone who has a similar diagnosis and what they are being treated with. I am on Tamoxifen and Xeloda but am worried that there are few other options for me. My Dr. said he doesn't know how long I will have left as I am very rare to be in the bone marrow as well as the bone. Please let me know if you have or know anyone similar. b.clutterbuck@talk21.com
by Bonce
on 9/25/2007 at 12:12 pm
Tami, first of all, know that God does have a plan for you and this is part of your journey. My story is so much like yours. I had a mastecomy on April 13th, 4 positive nodes. I am also known as the rock in my family....it's so hard to let go and be vunerable. First of all take the help that is offered. That is the only way our family feels like they are doing anything. Also, keep perspective. For the longest time I would wake up and think this must be someone else's life. Then one day I was watching TV and the local news showed the funeral for a local 20 year old killed in Iraq. I gained so much perpective at that moment. My beautiful 20 year old daughter is safe and healthy. I will survive this!!!! You will too. I finished my Chemo last week. 16 weeks of chemo later I am ok, I start 6 weeks 5 days a week on the 27th. I did have the support of a wonderful husband who loves me with one old saggy boob and a scar across the other...bald and all. I hope you have one close person that you can crumble on when you need to. I just keep telling myself this is a temporary situation. I was only sick 2 days after chemo for 2 days. After that I was golfing and doing my best to get out of the house. Allow the people that love you to be close to you and give you comfort. My doctor gave me samples of Provigil...that really helped me when I just didn't want to get out of bed. We can easily look at this as a free ticket to stay in bed...and there are times when that is just what you need...take it! Just don't let that ticket go for too long. You have a life and it's going to go on. I am lucky that I am a realtor and I work from home. I don't know if getting up and going to work everyday would have been better or worse. Having something to do everyday is usually a good thing. Just take the time to recover on the days you need to. Remember the way to make God laugh is to tell Him your plan! You will be fine....feel free to email me directly if you want to talk...this is still new to me. mjrogers417@hotmail.com Mary
by Mary Jo Idaho
on 8/21/2007 at 10:03 pm
Hello, my name is Tami and I am 34 years old. Within the last month I found a lump, had a mammogram, ultrasound, fine needle aspiration, core biopsies, MRI, and finally on Friday, a right mastectomy with lymph node dissection. 2 of my sentinel nodes were positive, so he took them all from under the arm. 3 of the 16 were positive. Although it was more than I needed, I'm glad it was all done in one surgery. It can be hard to "pump" yourself up for treatement after treatment after surgery.... I'll have a chemo port put in next week and should start chemo in about 2 1/2 weeks. I'm scared about the length of the treatment because I know I can hold it together short term for surgery, biopsies, etc. I pray for God's STRENGTH through this because I see myself as getting exhausted of the constant treatment with no immediate ending. What can you do to remain strong (mentally) through this? I'm such a people pleaser and want everyone around me to feel good. Sometimes I hide any sadness or fear because I don't want others to hurt. I don't think I can maintain it. but my family is NOT used to me breaking down.
by TamiJ
on 7/18/2007 at 10:20 am

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Hi Diane, I am an ovarian cancer survivor, who is staring the possibility of breast cancer in the face as we speak. When first diagnosed with ovarian cancer I viewed myself as a victim. I was hurt, angry, scared.. and all the emotions you could think of, was all rolled up in a ball of me. I have learned to free myself from those restraints, I have learned to love and accept all parts of myself. I know that all of my feelings are okay. I let go of my resistance to them. I learned it's okay to cry, it's okay to be angry, it's okay to have all the emotions that are involved with having cancer. I love myself for who I am right now, and for who I am becoming. I look at my experiences as gifts. Gifts that make up who I am today. Right now at this very moment as you are being re-diagnosed it may not seem a gift but a punishment. You were given the gift of strength to fight it once, look at this as a gift to make you that much stronger. You'll find if you do this you will have the power to not be the victim. These words are all easier said than done, but you will find in your own way how to "accept" challenges that keep re-occuring. It will never be easy, it will always be emotionally heart wrenching, and at first will beat you down.... but I have learned that eventually something gives, at least for me, and that time heals the mental stresses. It becomes a part of you, instead of outside of you, if that makes any sense. Let me know if I can lend a listening ear. ~Samantha
by Samantha
on 6/24/2007 at 1:18 am
Hello. I am a 25 year old female who was diagnosed with ovarian cancer at the age of 19, and received a total hysterectomy at the age of 21 after several different treatment efforts. I have been in remission for 4 years. But like any cancer after treatment you are left with a laundry list of other medical problems.
Now I am faced with the possibility of breast cancer. I have many many questions that are unanswered. The Breast Center refused to do a mammogram on me because I wasn't over the age of 30, but did an ultrasound, which came back "normal". So they did however suggest a ductogram.
I have had a ductogram and the test results were "somewhat normal". "Somewhat Normal" concerns me to no end. I have a long lump on the right side of my breast and have a clear discharge from the nipple. My breast seems to keep swelling, and is much larger than my left one. I am waiting to see a Breast Specialist, but needed more information. I have become very tired and exhausted in the past 3 days.. in the past 3 weeks my health has seemed to decline in a quick fashion. I was wondering if fatigue, muscle weakness, and body aches were symptoms as well. What should I expect when visiting the Breast Specialist? What questions should I ask? Should I demand a biopsy? Any help would truly be a blessing. Thank you for your support.
by Samantha
on 6/24/2007 at 1:00 am
Last week I had a bilateral simple mastectomy, the final pathology report just came back and now I have to go back into the hospital to have the nods chcked under my one arm. Because they found a small cancer stage 1a in a scar from a previous biopsy. I can't stop crying does any one have any ideas on how to stop and pick myself up and go agian. please help
by Diane
on 6/22/2007 at 6:46 am
Jini, here is the response from a Dr. on our Advisory Board: The treatment is mostly related to the presence or absence of estrogen receptors on the tumor. Perimenapause and menapause are not really differentiated.
ER positive patients are treated with Tamoxifen +/- chemotherapy premenopause and aromatase inhibitor +/- chemotherapy post.

Hope that helps!
by NBCF Team
on 6/20/2007 at 2:36 pm
Jini, we are checking in on this with our advisory team. Great question!
by NBCF Team
on 6/20/2007 at 10:59 am
Thanks for "Beyond the Shock". It helped a lot. But it seems most of the treatment is for post-menopausal women. I'm only in peri-menopause. How ill this affect my treatment?
by Jini
on 6/18/2007 at 5:39 am

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